Confessions of a Narcoleptic






Crazy Craftiness

OK, so I know it doesn’t seem to make a lot of sense, but one of the things that makes me feel better when feeling down is crafting, Maybe it’s because it makes me feel less useless. So in the last couple of months, I have been doing a lot of crafting. I made a lot of things for Christmas gifts – it was pretty fun. So here’s what I’ve been up to…

I made these shirts for the littles (Logan & Avery) for the Run for the Cure using my fancy Silhouette. One is with fabric paint and one is with rhinestones. I was surprised how fun and easy the rhinestones were to use!

IMG_3167

IMG_3169  IMG_3168

For Avery’s birthday…

IMG_3263  IMG_3264

I finally got around to “refinishing” this old filing cabinet.

Before…

Filing cabinet before

After…

IMG_3383  IMG_3384

I sewed this blanket for my niece, Nora.

IMG_3369

For my niece Addie, I made her this little blanket for her dolls. It matches the one I made her when she was a baby.

IMG_3370

For my little Wolverine, Logan, I made these claws. He loved them. Now he can be aggressive with cloth claws. (I found the pattern here.)

IMG_3371 IMG_3372

DSC_0100

I made this little makeup pouch for my sister-in-law for her birthday to go with some makeup I bought her. The pictures are really blurry, but you get the idea.

IMG_3396 IMG_3397

I was tired of our printer always being dusty, so I decided to make a cover for it.

IMG_3368

One of my best friends from high school had her first baby, so I made her this blanket. (So I think it’s a variation of this pattern.)

IMG_3347 IMG_3346

Another friend’s son needed a brown toque for a school play, so I told her I could make her one. I made one that was way too big, so I added a flower and gave it to her. The second one was smaller. It was a cute pattern that was really easy. I made another one in blue for another friend for Christmas. (Pattern here.)

dec02  dec03

I made these advent calendars last year and had a bunch of leftover supplies, so I decided to use them up to make more for gifts. They all turned out so cute, I couldn’t decide which one I wanted to keep for myself!

IMG_3379 IMG_3393

I’ve been wanting to try out this little cake stand idea for awhile. It’s just a terracotta pot and tray spray painted.

Cake stand I made

I sewed a couple of these large bags for Christmas.

IMG_3135  IMG_3136

I decided to use up some of my yarn stash to make an infinity scarf. My mom had been whipping them up like nobody’s business and hers all looked so cute, so I thought I should give it a try. This one is just a bunch of rows of double crochet. I kept it for me.

dec05

This pattern I found on Ravelry and liked it so much I made 4. Two were for teachers, one was for my mother-in-law and one was for my granny-in-law (ha ha!) I really want one of the blue ones for me. The fourth one I made was black, but I forgot to take a picture of it. I kinda want one of those too. (Pattern here.)

dec06 dec11

dec07

I made these ear warmers for the girls I work with at church. (Pattern here.) If I had had more time, I would have added flowers.

dec09

I made little hats for my nieces and nephews on the Popowich side. One was too small though, so I’ll have to make another.

For Max… (Pattern here.)

dec04

For Nora…(Pattern here.)

dec10

For Addie…(Pattern here.)

8973611712_b2ebdd6853_z

And the crown jewel of my collection…I made this for my brother Joel, a huge Doctor Who fan. If you’ve seen Doctor Who, you will recognize this little creature. If not, why they heck don’t you watch Doctor Who??? (Pattern here.)

dec08

And last but not least, I thought my nephew Charlie would appreciate this cute little art kit more than a crocheted hat, so I sewed this for him. It is far from perfect because it is the first of it’s kind I have ever made, so the method has yet to be perfected. Hopefully he and his mother won’t look too closely at it! :) I found the tutorial here. 

dec12 dec13

And that just about wraps it up! Now that Christmas is over, I have to find other excuses to make stuff!


Real Confessions, Not Just A Clever Title

I haven’t felt this crappy since…well, since before I was diagnosed probably. I HATE not being in control and my life is spinning out of my grasp. I can only do so much, I can only be so many places and I can only survive on so much sleep. My disease/condition/weakness and I have made peace a long time ago. Yes, having narcolepsy is a burden. A frustrating burden that most people don’t understand or don’t care to understand. To a lot of people, it’s a joke, portrayed poorly and inaccurately by Hollywood. Some people have never heard of it, or simply don’t know what it really is. But for me and for my family, it is very real and while I don’t mind the occasional joke, it’s just not funny. It’s my reality.

What changed? I found out at the end of October that there is a nation-wide shortage of my medication used to treat the excessive daytime sleepiness part of my disorder and it is unknown when the shortage will cease. They predicted mid-November, but now they are saying December and I’m not that optimistic.  So I’ve been living unmedicated for almost a month and WOW, is it hard. I forgot. I forgot how tired I get, how easily I fall asleep and how hard it is to wake up. I forgot how much of my life could be sucked up by sleep, how out of it I could constantly feel – like I am living in a haze. I also forgot how awful it is to be constantly late because “I fell asleep” – how STUPID it makes me feel and how frustrating it is to not really be able to do anything about it.

It’s been a long time since I thought I don’t know how much longer I can do this, or had to say no to things because I knew it just isn’t in the cards right now. Or since I thought – WHY ME? DAMN NARCOLEPSY! and NO ONE UNDERSTANDS. It goes against the very fibre of my being to admit defeat, to admit that I can’t do something or to simply not be able to do something. I already hate the level of dependance my life has on other people, but now…

Our family is living off of pre-cooked, frozen or easy meals, like pancakes for dinner, my kids are in heaven because of their unlimited screen time hours…all because I can’t pull it together enough to NOT be sleeping at dinner time. And before dinner time. Or when my kids get home from school. Or when my kids are supposed to be leaving for school. Or when I’m supposed to be picking my kids up from school. Or when I’m supposed to be at work. And on, and on, and on.

I’m not writing this for a pity party. Or asking for help. Just understanding. Just forgive me my incompetence and have patience with me. I’m trying. And failing, but hey, at least I’m trying.

Confessions of a narcoleptic right?